Friday, June 8, 2018
Goodbye...
Tuesday, April 17, 2018
Wing Update #2
Wait and see!
The hard thing about being in the hospital this long is that people come and go daily. You meet cool people and make friends, then they are gone in the blink of an eye. I am happy they got better, but it is hard not to feel a bit of a loss when they leave and a bit selfish that they aren't there with you anymore. About 3 weeks ago, for a week, we had the most amazing group of people. I remember one moment in particular where we were sitting out on the patio and "Sam" was playing guitar and singing. "Ralph" was drumming on an upside down garbage pail. The little fountain behind us was making water splashing noises, and it as just the most peaceful moment I can remember in a long time. Everyone got along. We were all friends. And not just "hospital friends" but real friends I want to keep in touch with outside of this setting. Out in the real world. We are planning a get together party but they are just waiting on me to get out. If Friday happens, then maybe we will have our get together the next weekend. Anyways, these amazing people I've met made being in here for so long tolerable and it is always bittersweet when they leave.
Time for a vitals break. Like I mentioned in one of my other posts, they love to do vitals all day long. Because of the new medication I'm on, they do mine even more often. I have good blood pressure always, but my resting heart rate is very high. Guess it is just my normal.
Ok, back to the post: I have been reading Harry Potter again. There isn't really much to do around here so reading books has been my answer to boredom. I have read about 7 books in the past 4 weeks. That's a new record for me I think. We are watching Pitch Perfect 3 tonight as our movie. Probably will start it up in half an hour. I'm listening to the best of Andrew Lloyd Webber while I type this. Music keeps me distracted from voices.
I have high hopes for this new medication (Clozapine). It is sort of a last resort medication when treatment with other medications hasn't worked. I started on it last Monday and have noticed a slight decrease in the voices, but it is still too early to tell how it will work. It has worked wonders for many people, so I am hoping it will for me too. The downside is that you need to get weekly blood tests to watch your white blood cell counts. The medication can lower them and leave you without any defense against infections which can be deadly. So they just monitor it closely.
Anyways, I'll update you from beyond the hospital bubble when I get out. I don't even know what the date is, and i only know it is tuesday because we had tacos for lunch today = taco tuesday!
Thanks for reading!
Friday, April 6, 2018
Happenings from "The Wing"
I will probably be here another two weeks. This will have been my longest stay, and I have been particularly resilient to the medications so we have one last one to try, a "last resort" medication called Clozapine but it requires blood tests weekly because it lowers your white blood cell count. Not an option I'm thrilled about, but if it quiets my mind I guess it is worth it.
Tonight, it is about 7:45pm. It is Movie Night so we will be watching the Shape of Water. Snacks will be coming out soon too. I love snack time. Puddings, fruit cups, chocolate mik, cheeses, crackers and cookies, and yogurt. I talked to the nutritionist so I get a special snack - blueberry greek yogurt and fresh blueberries and raspberries. Yummers. Today we had some groups (art therapy, psychology group) and maybe others but I don't remember. All these groups make me feel like I'm in school again. Some are helpful and some not so much.
A lot of my friends that I made here have discharged, so it is a bit lonely here on "the wing" these days. We call it that because the name of our ward is East Wing 1. Oooooooh, the snack cart just passed by and i grabbed my treats. One of the new medications they put me on makes me constantly hungry. It isn't doing much for the hallucinations though, so we probably won't stick with it.
Oh, movie starting, gotta run.
Now it is tomorrow (Friday).
Consensus on Shape of Water - weird. I can't say I hated it, but I wouldn't watch it again. Since there is not much to report, I'll make a list. I love a good list.
Here is what I have done today so far:
- woke up around 6:00am for vitals (why do they take them so early??)
- Got up, stumbled to the main room where some other people were up.
- "What's the happs guys"? Sat down and joined in watching TV
- Got a coffee (yes, COFFEE. Those who know me know I don't drink coffee. Who am I these days? Desperate times call for desperate measures, and caffeine was a must because I was up until 3am.)
- Put TONS of creamer in coffee to make it bearable
- Watched Dogs 101 (great show)
- Had some breakfast: biscuits and gravy and some eggs
- Took a nice long nap
- Patrolled the halls for shadow monsters (a new hallucination of mine)
- Skipped lunch because I was still to full from breakfast
- And here we are. I'm listening to some tunes as I write this.
Thursday, November 9, 2017
What's a Mental Hospital Like??
I’m sure it’s a question that you might have wondered after reading my blog which mentions numerous stays in the psychiatric hospital. So, because it is actually very interesting, I thought I’d describe what happens when you get admitted. First, to get admitted isn’t easy – I read a quote saying it’s easier to get into Harvard than into a psych ward. To start the process, you have to go to the ER at a hospital. I always go to the one closest to Mesa Vista (one of the psychiatric hospitals in San Diego that my insurance accepts, and the nicest, so I’ve heard). At the ER, they ask you the usual “why are you here” type questions which in my case has always been that I am an immediate danger to myself because of my symptoms. Read the other posts for details on that. They take you to a room, ask more questions, take blood, then set you up in an actual room with a bed and a little tv and a curtain for privacy (which I never close because I want to see the happenings), and they make you wear a hospital gown. It’s very interesting to be in the mix of the ER bustle. Last time I was there, my neighbor was moaning very loudly and persistently because she was having trouble pooping (or that’s what we gathered at least). Every time someone passes by it’s a game of “what are they here for??”
After a while, hopefully not too long, but sometimes hours, a member of the behavioral health team comes in to assess you. They ask a LOT of detailed questions to determine if hospitalization is necessary. “I don’t usually admit people that want to be admitted” revealed Ben (the PET team member who was assessing me) after I exclaimed that I didn’t want to be admitted. So, after a lengthy interview I was admitted. Then you have to wait for them to take you there, because in this case Mesa Vista is a separate building from the main hospital. They take you by ambulance, which is ridiculous because it’s literally around the corner. You could walk in a few minutes. But hey, that’s protocol.
When you get there, be prepared to answer a barrage of questions and have tests done (more blood, urine, etc). There’s a lot of paperwork to sign, and then they need to go through all your belongings to make sure everything you have is safe and allowed (there are a LOT of rules that keep changing every time I am admitted). This time, I was transferred around 2am, so was very tired when being put through the admissions process and just wanted to snuggle up in my penguin blanket with my stuffed bears that I had brought. But nope, no stuffies allowed. No blanket allowed. I had a meltdown by the nurse’s station. It was too late for this and I just wanted a simple comfort from home. “People bring in contraband inside stuffed animals” I was told. I had to pull myself together and remind myself that I am a grown 34 year old woman and can survive a few days without her blanket and stuffies. Needless to say, I don’t think I slept at all that night. It’s loud, it’s bright (there are windows on the bedroom doors) and people are constantly coming into the room to do checks. Every 15 minutes. 24 hours a day. They have a clipboard and write a little number corresponding to your location.
The weirdest things to get used to are the total lack of privacy (even the bathroom doors don’t go all the way to the ceiling), not having access to your cell phone or electronic devices, and the rules about what is allowed in your room, what you can have access to in storage, and what is not allowed at all. Anything metal, sharp, or otherwise deemed “dangerous” is not allowed (belts, shoelaces, or any type or string on clothing is a big no no). For some reason, makeup is allowed in storage, but not in your room. I finally talked one of the nurses into letting me keep my stick of mascara in my room, but that was after a few days and had been initially told no. Tweezers? Forget about it. Jenga? Storage only. You can shave your legs only under staff supervision. Needless to say, there’s a lot of hairy legs on the unit haha. In the rooms, there are almost no flat surfaces or things that people could tie things to. I don’t really know what trouble people can get into with flat surfaces, but I guess people get creative when they are trying to hurt themselves or others. The shower head is this little nub that comes out of the wall and sprays a pathetic stream of water at you, and you need to splash yourself and squeeze up against the wall to adequately wash yourself. The beds are lined with plastic because they need to keep them sanitary, so they are squeaky and not that comfortable. The pillows are the same – those flat plastic lined things that don’t offer much support or comfort. The blankets are thin and scratchy (and so are the towels). But that’s just a minor inconvenience.
Meals are excellent – they feed you well and often. I swear, I always come out of there 5 pounds heavier. The last few times I had been in, the highlight of my day was filling out the meal card. You got to pick what you wanted for breakfast/lunch/dinner the next day from a little menu card. This time, our meals were served in more of a buffet style system. I liked that better because I could control my portions better without wasting food.
The wards themselves (I have stayed in two different ones, each with its own benefits) have community space for hanging out, watching tv and using computers, a room for dining and having groups (psychology or recreation therapy or crafts), a nurses station, bedrooms, a medication room, interview rooms for when you meet with the nurses/doctors, and an outdoor space. The doors to the ward are kept locked and only accessible with a special fob that the staff all have. No escaping for us. Not to mention they’d notice pretty quickly with all the checks they constantly do. It’s funny, you stop noticing the nurses with the clipboards hovering in the background fairly quickly.
You meet with your psychiatrist daily to go over your treatment plan, update on medication, and talk about how the symptoms are changing if at all. It’s usually a pretty quick visit. This time, because of my non-compliance with medication, it was decided that a slow-release injection of Haldol was a better option for me. Not only would it ensure that I would get my medication consistently, but it is better for me mentally to not have to be a slave to pills every night. I agreed to this course of treatment.
Oh another thing they LOVE to do all day is take your vitals. Each morning between 6:15am – 6:30am they wake you up, take your blood pressure and temperature, then let you go back to sleep. They do vitals like TWICE more throughout the day. First sitting, then standing. Because I guess there’s a difference. I’m super good at vitals and always have perfect blood pressure. I did learn that my heart rate runs naturally high though. A debate started when my brother visited and he had a fitbit that showed his heart rate under 60bpm. Mine ran over 110 usually (resting rate). We had to call a nurse over to settle the score of “who has the normal heart rate”. Apparently normal is between 60-100bpm, so neither of us won that one.
You can pretty much do what you want all day, except they turn off the tvs when it's group time to encourage you to go. The remote for the tv is also literally the size of an ipad. It’s the weirdest thing. When I saw it for the first time, I was alone and wished someone was around so I could have looked at them and laughed and said “amiright??” You can nap, eat, not eat, hang out with other patients, read, color, go to groups, not go to groups, whatever you want. There are also snacks in the fridge so if you want pudding or cheese you can have that whenever you want. Not bad, right? Then you remember you are locked in.
The other patients are a whole other story – some are cool, some are weird, some are just plain annoying. I met a guy once who claimed to be a musical savant and told stories of his life. He had a gross leg wound and the bandage kept coming off. Eeew. Some patients have bipolar, depression, alcoholism, or who knows why they are there. Some are court ordered. Some are on involuntarily holds (meaning by law they cannot check themselves out) and others are voluntarily. I have been mostly there voluntarily, although one time I was on a 51-50 hold. That’s what they call it and it lasts 72 hours. Then you are considered voluntary after that if they think you don’t need to be legally held any longer. If they want to extend it, they have to have a hearing with a judge and stuff. I’ve never had to do that.
Then, after your symptoms have stabilized and you feel safe to do so, they usually release you. I’ve been held longer than I wanted to stay many times because I was still experiencing symptoms even thought I didn’t feel like a danger to myself anymore. So, eventually, if you want to get out, you tell them what they want to hear: “nope, no more voices!” And then you are set FREE!! And you have to do a whole bunch MORE paperwork and discharge stuff. That’s boring though so I’ll skip that.
The best feeling in the whole world is driving out of that parking lot back into the world. Never am I more happy to stop at red lights or get stuck in traffic. It’s like getting drunk on freedom. First stop? Starbucks.
Hopefully this helps eliminate some of the mystery of the mental ward. It’s not such a scary place, and certainly necessary for me from time to time. I always am super reluctant to go in, but leave knowing it was the right decision. This is also only my experience at one hospital. I’m sure there are awful places out there, but I’ve always been lucky with Mesa Vista. If you have any questions about any of this, feel free to ask!
Wednesday, November 8, 2017
It Continues...
The other day in therapy, we were asked to think of some things that we used to enjoy doing, but don’t do any more. I thought about it, and landed on “writing”. I have always enjoyed writing stories (see my blog for some good ones), and also prefer to communicate important things via written word because I have time to think, organize, and present my feelings in a structured way where I feel more in control. Face to face conversations, especially about difficult or conflicting things, can be full of uncertainty, and if not prepared, I feel like I never get my point across properly or in the way I mean it to. For example, I’m not going home for Christmas this year (for a number of reason) but the main one is that many of my friends have new babies that I want to meet and spend time with. Christmas is not the best time for that, so I’m going to go to Vancouver in March or April when timing is better for everyone. I tried explaining this to my mom and proceeded to hurt her feelings and give the idea that “I don’t value Christmas traditions” or that “I don’t value my family” and a whole bunch of other negative stuff gets perceived. I should have just written a well thought out email, and all that could have been avoided. Anyways, I digress…. I wanted to write this as an extension to my other blog that I posted about a year ago about my experiences with mental illness, because as I said in the last post – it is a story that is never over.
I wanted to write this now because I feel like I need to before the medication kicks back in and takes away my creativity again, including my ability and will to write. Yes, I was off medication for a few months (bad me), but now I am on a slow release injection so not taking medication isn’t even an option any more. It’s in me for good, and let’s just say that if I don’t show up for an injection appointment, it will be noticed. One reason I stopped taking medication was the awful side effects that come along with it, one being for me, a feeling of complete dullness and zombie-like existence. My spark was gone; all the things that I feel make me who I am are taken away, and what is left is a shell – a person who looks and acts like Lindsay, and even can joke around and have fun and enjoy things – but the essence is gone. It’s like living in your own shadow, and that was just not for me. So I stopped. Cold turkey. Just like you aren’t supposed to. This was in June. I was going on a trip to Vancouver with a friend in a few weeks and I couldn’t stand being tired all the time and feeling dull and cloudy, and I wanted to enjoy this trip. There was some withdrawal I felt after a few days off medication. Upset stomach, headache, just generally a sick feeling. I threw up a few times. But I knew it would pass (I had tried going off medication one time before for a few weeks and these were the same symptoms that had happened that time, but I felt so awful that I caved and started taking the medication again just to feel better). After about 2-3 weeks, I felt fully normal again. Better than I had in a long time actually. I went on my trip, could stay up to 11pm like a real adult, had energy, and was genuinely feeling like myself again. I was symptom free too! This was great. But it didn’t last. Of course. I started having some symptoms come back after about two or three months. Nothing serious, mostly just intense anxiety at first. My poor fingernails suffered with that though. Then the voice of the little kid spirit showed up. He never says much, but he cries and laughs a lot, and follows me everywhere. Then came back Ivan, and if you read my older posts, you’ll know who I’m talking about. He was pleasant enough at first, but then started up with his usual “I want you to die and be a spirit with me” thing, and he would try to get me to hurt myself, which escalated into him trying to get me to kill myself, etc etc. There was also paranoia that police were after me, and every time I got home from work I was sure they would be there waiting for me. It didn’t help that the police sometimes park inside the gate at work and so I thought they were after me there too. I also started feeling like people could read my mind. Same old same old. It wasn’t long before people started getting concerned, and I admit it, even I was starting to feel my control slipping away. I had another near suicide attempt in one of the bad moments – I won’t get into it, but Tiki saved me from a very bad decision. It was a few days later that I was back in the hospital for the fifth time.
I don’t want this post to be incredibly long, even though it already is getting that way, so I’m going to skip over the details about the hospital and all that (I did meet some characters in there, as usual, and we watched the world series as a whole ward so there was an extra sense of camaraderie with all the patients this time. FYI – I was a one of the minority of people hoping for Houston, and we did it!!). I can do a whole other post about what it’s like in a psychiatric hospital, the “mental ward” if you will. It’s interesting, but not for right now.
What is for right now is the point of why I wanted to write this even though, right now, that is the exact opposite of what I actually feel like doing. I want to run and hide in Mission Trails behind my house and not talk to anyone ever again, especially if they ask “how do you feel today?” I don’t want to answer any more questions, I don’t want to tell any more nurses, social workers, psychiatrists, etc about my symptoms, I just want it all to go away. I went back to read my old posts in this blog, to see what I wrote about because I honestly couldn’t remember, and what I discovered was someone in a good place with their diagnosis and situation. Someone who had reluctantly accepted their fate and that this was something that needed to be managed on a daily basis through medication and therapy, but things were looking up and it wasn’t so bad.
Something happened in this last year because it is not where I am today. Somewhere along the line, I started to feel extreme anger at the situation. A hatred for mental illness and for myself. All these recovery stories just made me mad and bitter, and I hated the girl who so openly wrote about her experiences with the spirits and medications and hospitals. I wanted to un-post that blog and pretend that no one had read it or knew that about me. I just wanted to be me, without all that attached. Me, before anyone knew what I dealt with or became involved. Me before medication. Me before therapy. Me as I was growing up, though sometimes a struggle to do it alone, I want to go back to that. But I know that’s not possible, and that my condition has continually gotten worse as I have gotten older. And that there is no more hiding it now. But I still hate it. And I feel like there is no way out. Medication which makes you feel dead, or symptoms which have the capability of making that happen for real. Either way, there is no good option. No way out of this. If only I could have the ability to control my own brain which so horrifically betrayed me, or to will all of this away, but I don’t. And I don’t know how to deal with it.
Saturday, January 7, 2017
THE END: for now
I am very open to discussing all aspects of my journey so if you have questions please ask them. I am an open book when it comes to this (finally now after hiding it for so long) and I hope to find others who will open up about their personal struggles with mental illness from anxiety to depression and everything else in between. I still go to a support group through CARE and there is always the chance that symptoms will return. I just take it one day at a time. Thanks to all my friends, family and therapists, who have been so amazing and supportive through all this. I might not be here if it wasn't for your continued support and love.
Thanks for reading.