Friday, June 8, 2018

Goodbye...


How do you say goodbye to something that has been a part of you for more than two thirds of your life?  Something that is so engraved into your personal story that you almost don’t know who you are without it.  I am talking about the Spirits of course.  If you read the first blog post of this series, I talked about how they came to be, over 22 years ago.  Like a shadow, they followed me throughout my teen years into my twenties and then my thirties.  Though not always present, they were lurking in the depths of my consciousness, ready to show themselves without warning and often interrupting my ability to function.  Not only that, but they were dangerous, always trying to lure me into harmful situations.  Despite the disruption to my life, part of me was comforted by their presence.  They were part of me.  They grew and evolved with me over the years.  They were a constant in the ever changing landscape of my life: moves to different states, new jobs, relationships, friendships, hard times and good times.  They were there with me.  And now they aren’t. 

Part of me feels abandoned by them and part of me feels so free from their grasp that I never want this feeling to end.  For the first time since being diagnosed over four years ago, I can say with complete honesty that I feel great.  It’s a feeling that I thought was lost forever.  I have the medication and therapy to thank for giving me my life back.  Despite having to get a blood test every week, the hassle is a small price to pay for feeling this good. 

Let me back up to the beginning of the paragraph above where I said part of me feels abandoned by the spirits.  You might wonder how someone could be protective of these Spirits which were mostly hostile, but experiencing them was something very personal.  Something only I experienced and no one else could ever really know what it is like.  They were a part of me just like how having blue eyes and blond hair is a part of my identity.  The first step in saying goodbye was to start recognizing them as hallucinations and not as actual spirits.  Despite the strong evidence that medication makes them go away, a part of me will always wonder if they were actually real.  It is a hard habit to break, calling what I experience 'hallucinations'.  They have been “the Spirits” for most of my life.  Changing my thinking was and still is a work in progress.

This post is supposed to be a goodbye letter to the Spirits, but I felt it was necessary to describe why this is so difficult to write.  Why it is so hard to say goodbye.  Hopefully you will understand why just saying “good riddance to these horrors!” is not something I have been able to do easily.  I read a fantastic blog by Sara Courter called “Puzzle Pieces: Letting Relationships End” that really hit home to me.  The blog is geared towards relationships and friendships, but it can be applied to my hallucinations as well.  Saying goodbye isn’t an easy thing to do and this blog explains it beautifully.  She says “what is it about ‘forever’ that makes us cling, cling like fuzz to fabric and children to parents’ legs?”  I need to accept that the Spirits don’t have to be forever and that I can live a much happier and more productive life without them.  However, I still am saying goodbye to a piece of myself.  A piece of my identity.  Something that made me unique.  And it isn’t easy to do.  But I’ll try. 

So with that, goodbye Frederick, goodbye Ivan, goodbye Allister. 

My Spirits. 

You are not my identity.      

Tuesday, April 17, 2018

Wing Update #2

I am still in the hospital.  It has been 5 weeks.  If all goes well I will be discharged on Friday afternoon, pending my doctors evaluation.  I feel good though.  The Abilify made a huge difference in my mood and actually feel more like myself than I have in a long time.  So hooray!  maybe I'll get back into writing my art blog.  I have a new picture to draw based on a friends suggestion.  The only clue you get is: TACO.  What will this picture become?  What characters will appear in it?
Wait and see!

The hard thing about being in the hospital this long is that people come and go daily.  You meet cool people and make friends, then they are gone in the blink of an eye.  I am happy they got better, but it is hard not to feel a bit of a loss when they leave and a bit selfish that they aren't there with you anymore.  About 3 weeks ago, for a week, we had the most amazing group of people.  I remember one moment in particular where we were sitting out on the patio and "Sam" was playing guitar and singing.  "Ralph" was drumming on an upside down garbage pail.  The little fountain behind us was making water splashing noises, and it as just the most peaceful moment I can remember in a long time.  Everyone got along. We were all friends.  And not just "hospital friends" but real friends I want to keep in touch with outside of this setting.  Out in the real world.  We are planning a get together party but they are just waiting on me to get out.  If Friday happens, then maybe we will have our get together the next weekend.  Anyways, these amazing people I've met made being in here for so long tolerable and it is always bittersweet when they leave.   

Time for a vitals break.  Like I mentioned in one of my other posts, they love to do vitals all day long.  Because of the new medication I'm on, they do mine even more often.  I have good blood pressure always, but my resting heart rate is very high.  Guess it is just my normal. 

Ok, back to the post:  I have been reading Harry Potter again.  There isn't really much to do around here so reading books has been my answer to boredom.  I have read about 7 books in the past 4 weeks.  That's a new record for me I think.  We are watching Pitch Perfect 3 tonight as our movie.  Probably will start it up in half an hour.  I'm listening to the best of Andrew Lloyd Webber while I type this.  Music keeps me distracted from voices. 

I have high hopes for this new medication (Clozapine). It is sort of a last resort medication when treatment with other medications hasn't worked.  I started on it last Monday and have noticed a slight decrease in the voices, but it is still too early to tell how it will work.  It has worked wonders for many people, so I am hoping it will for me too.  The downside is that you need to get weekly blood tests to watch your white blood cell counts.  The medication can lower them and leave you without any defense against infections which can be deadly.  So they just monitor it closely.

Anyways, I'll update you from beyond the hospital bubble when I get out. I don't even know what the date is, and i only know it is tuesday because we had tacos for lunch today = taco tuesday!

Thanks for reading!   

Friday, April 6, 2018

Happenings from "The Wing"

I wrote a post in February about hope.  Sounds nice, right?  Well it wasn't.  It was about lack of hope.  It was such a downer of a post that I didn't even post it.  I want to brighten the mood from that post with one today from within the ward.  I was admitted 3 weeks ago for having command hallucinations telling me to injure myself and have been at Mesa Vista ever since trying to find a combination of medications that will curb the voices.  My mood has been excellent since starting on a medication called Abilify.  I feel good, except for the voices are still there so we have to keep trying other things.

I will probably be here another two weeks.  This will have been my longest stay, and I have been particularly resilient to the medications so we have one last one to try, a "last resort" medication called Clozapine but it requires blood tests weekly because it lowers your white blood cell count.  Not an option I'm thrilled about, but if it quiets my mind I guess it is worth it.

Tonight, it is about 7:45pm.  It is Movie Night so we will be watching the Shape of Water.  Snacks will be coming out soon too.  I love snack time.  Puddings, fruit cups, chocolate mik, cheeses, crackers and cookies, and yogurt.  I talked to the nutritionist so I get a special snack - blueberry greek yogurt and fresh blueberries and raspberries. Yummers.  Today we had some groups (art therapy, psychology group) and maybe others but I don't remember.  All these groups make me feel like I'm in school again.  Some are helpful and some not so much.

A lot of my friends that I made here have discharged, so it is a bit lonely here on "the wing" these days.  We call it that because the name of our ward is East Wing 1.  Oooooooh, the snack cart just passed by and i grabbed my treats.  One of the new medications they put me on makes me constantly hungry.  It isn't doing much for the hallucinations though, so we probably won't stick with it.
Oh, movie starting, gotta run.

Now it is tomorrow (Friday). 
Consensus on Shape of Water - weird.  I can't say I hated it, but I wouldn't watch it again.  Since there is not much to report, I'll make a list.  I love a good list. 

Here is what I have done today so far:

  • woke up around 6:00am for vitals (why do they take them so early??)
  • Got up, stumbled to the main room where some other people were up.  
  • "What's the happs guys"?  Sat down and joined in watching TV
  • Got a coffee (yes, COFFEE.  Those who know me know I don't drink coffee.  Who am I these days?  Desperate times call for desperate measures, and caffeine was a must because I was up until 3am.)
  • Put TONS of creamer in coffee to make it bearable 
  • Watched Dogs 101 (great show)
  • Had some breakfast: biscuits and gravy and some eggs
  • Took a nice long nap
  • Patrolled the halls for shadow monsters (a new hallucination of mine)
  • Skipped lunch because I was still to full from breakfast
  • And here we are.  I'm listening to some tunes as I write this.
Later, I might go to a group or two.  Maybe have a snack.  Maybe read my book.  I have no solid plans.  Such is the way in the Wing.  

Anyways, that's all for now.  My spirits are high (my spirit, not THE spirits) and hopefully I'll be out of here soon.